Rose's Cancer Blog

Acute Radiation Proctitus

Has anyone been treated with this. I finished treatments on April 5, 2017. I still having many issues with bowel movements.  Bleeding and painful stool. Dr started treating me for Radiation Proctitus last month. I have spasms and mucus discharge as well we abdomen pain. He said it was rare but could happen. Just wondering if anyone else has had these problems one year post treatments 

DeAnna sent you a hug.
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Hi Rose! I am almost 4 years out from treatment. I have painful stools if they are harder...I still have mucous on occasion and it's usually accompanied by loose and urgent stools...blood only every now and then and again usually with a harder stool that seems to irritate things. Not really pain in my abdomen other than cramping on occasion with urgency...I can say that it took quite a while to get to this point and it still feels like one step forward and two back sometimes.
Hugs!!
Sara
Easterly likes this comment
I am so ready to feel better. I had a pretty rough year and could not get signed on here to share. Just changed my password today and was able to get on. I am Thankful to be alive but just wondering when it will get better. Not wanting to whine just feel like I am missing out on so much with my Grandbabies
DeAnna likes this comment
It does take time for sure! You kind of get over that initial hump from the treatment and then deal with the more long lasting stuff. I truly believe that as the years pass it does get better..maybe not exactly as you were prior to treatment but pretty good most days. You and I are about the same age... I'm 61...not sure how much age plays into the healing process. I know that radiation proctitis can be a real bugger so I hope that if you are suffering from that they can get a handle on it. I thought I read here a while back that hyperbaric oxygen treatment is something they can do to help ? Maybe someone else can speak to that?
Rose, Carol like this comment
It does take time for sure! You kind of get over that initial hump from the treatment and then deal with the more long lasting stuff. I truly believe that as the years pass it does get better..maybe not exactly as you were prior to treatment but pretty good most days. You and I are about the same age... I'm 61...not sure how much age plays into the healing process. I know that radiation proctitis can be a real bugger so I hope that if you are suffering from that they can get a handle on it. I thought I read here a while back that hyperbaric oxygen treatment is something they can do to help ? Maybe someone else can speak to that?
Thank you Sara. I don't heal well it seems I am having issues where they took my port out last two months ago. I have one stubborn stitch that wants to hang in there and the knot under the incision is bigger than the port was. I go to see Dr Monday so I will address it then. Maybe the Proctitus is scar tissue. Who knows
DeAnna likes this comment
I take Gabapentin for spasms and sometimes Vicadon for pain. I do try to keep things moving and soft. I also use several compounded ointments and suppositories. I am 3 years out. This year I have really been focusing on my diet more as to helping my stomach issues along with frequency.
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Gabapentin has really helped me too.
You will feel better...it will take time. I have experienced what you’re going through. I would stay away from nuts and dairy to see if that will help. Hugs
Rose, Maridel like this comment
Thank You. Are you being treated now
Hi Rose—I had the usual problems with frequent diarrhea, etc. after treatment. In year two I started having severe bouts of gut pain (right behind the belly button) that became debilitating. My gastroenterologist, and later a nutritionist, said it was probably damage from chemo-radiation. I learned quite a bit about gut mucosa and such, and those professionals helped me get through it. If you’re on probiotics, which were recommended by both, you have to be careful not to have “over population” of gut bacteria. In the past year I have had an endoscopy and colonoscopy, with no bad results. I’m finally in a place that I would call “normal” and am very happy about that. I’m about 4 years out. In a year my radio onc has said I will be prounced “cured” so am looking forward to that. Just keep asking for answers from your team, and stay positive.
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I have intestinal spasms and rectal spasms. I take Dicyclomine (Bentyl) for the stomach/intestinal spasms. It is incredible! I have another one I can take on top of it that works faster.but I can't think of the name of it. I will pm you with the name when I get home to see the bottle.
Are you also experiencing rectal spasms? (I know, waaayyy too much information)
These are trickier to catch in time before they get awful but I know how to get in front of them. Let me know if you need this information. I am happy to share with anyone who has them. They can become excruciating if not stopped.
I work on my diet to control hard stools or too soft stools. I keep a log to write down what I ate if it goes too far either way. It did get better for me. Big big hugs. Let me know if you are interested in any more info.💜
Rose, Linda like this comment
Yes please share information. I do have those issues as well. I eat but sometimes I hate to because I know I will have to go to The bathroom. Now it is starting to be like clock work in the mornings and it is pretty painful. I thought it would be better by now. I don't lose the urge to go and always have to go multiple times which causes irritation
Straining can trigger rectal spasms which is hard to avoid if you have hard stools. Orgasms can trigger them too. Sometimes having to hold it for a while before you can get to a bathroom can trigger them. After you have had one or two go on too long so that they get really really painful you start to pay attention to the early signs so you can get ahead of them and stop them before they get too bad. I have even had them wake me up at night and as soon as I tuned it to what woke me I started counter measures to stop them.
First of all my Dr. gave me a prescription for methylcarbomal and another for lorazepam. I do not use them very often because my rectal spasms don't happen as often as they were. I am 4 years out from my last treatment.
At the first sign of a spasm turn a heating pad up to high and sit on it. Don't recline until you know it is backing off. After sitting on it for a few minutes if it continues to escalate take a methylcarbomal or a lorazepam and get back on the heating pad. The heating pad is your new best friend. Try breathing deeply and calmly to signal relaxation. If it starts backing off you can recline (as in bed, which is where I have my heating pad) but stay on the heat . If it gets too hot turn it down but stay on the heat. I have found this combo really helps intervene. Do not walk away from the heat too soon. A rectal spasm is like any muscle spasm, once it has triggered it can easily trigger again until it is completely relaxed and gone. The heati does most of the heavy lifting but the meds will kick in and help if you didn't catch it in time or if the heat isn't working. I can usually stop the spasm within 20-30 minutes. Depending how severe it was will make the decision on how soon I get up.
I hope this helps💜🙏🏻
3 people like this comment
Thank you gpfor this information. I am going to discuss this with my Dr for sure
Carol likes this comment
Oh my gosh, this started happening to me about 2 months ago. Really bad spasms in the rectal area. I went to my doctor and he had me do a fleet enema as I was constipated and that helped. But I still have a lesser version of the problem and it is worse when I lay down. Thank you for sharing this information, Carol I will be 4 years from treatments on May 2. I believe we are close on this.
Carol likes this comment
Rose, I'm sorry to hear you are dealing with this. It is a fairly common condition for those who have undergone treatment for anal cancer, but can certainly be aggravating and painful. I disagree with your doctor's statement that this is rare. I have experienced this and will say that it was the worst during the first 2 years after my treatment. I am nearly 10 years out of treatment now and still have times when I have some symptoms of proctitis. I would like to know what your doctor is doing to treat you for this. Before you convince yourself that this will be permanent, give yourself a little more time. I seemed to turn a real corner at the 2-year post-treatment mark and things greatly improved.

There is a lot of information on the internet about radiation proctitis, so I suggest doing some research if you haven't already done so. Some people have benefited from Hyperbaric Oxygen Treatment for severe cases. Here is a website about a study done that proved it's effectiveness. https://www.ncbi.nlm.nih.gov/pubmed/16337705
Rose, DeAnna like this comment
Thank you Smurf
Smurf likes this comment
Hey are you with support group in Georgia Smuf
Smurf likes this comment
I am sorry I didn't include what he has me on. Vitamin E 400 capsule twice daily and Pentoxifylline 400 mg twice daily
I live in Georgia and we do have a few local BFAC posters who get together about once a year. Watch BFAC for notice of any upcoming get-togethers. You would be most welcome to join us! We are all in the metro Atlanta area or surrounding counties.
Rose likes this comment
Hi, Rose, I’m another GA AC survivor, stage 3A, 6 years out. Year 2 was not a whole lot better than the first 6 months post treatment. Proctitus is common. Carol has offered some great advice. Be patient as time will make it better and the grand babies will be still ready to play and love on their grandmother. Good wishes for your healing.
Rose likes this comment
Not so rare in my life after anal cancer treatment.

Things have finally started to get better --- 3 years out.

I have just now began to eat more regularly. Since treatment I have continued to eat low fiber low residue. No apple peels...

Mucous is regular. Urgent diarrhea regular. Immodium is my friend. I purchased large bottles of it.

Funny though. Now that I've been eating more fiber and veggies, I am more constipated.

Hang in there.
Rose likes this comment
Thank you for responding. I am just post one year so I guess I better learn to grin and bear it
Happy birthday Rose!
Hope you felt well enough to have a good birthday celebration!
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Vital Info

Posts

February 20, 2017

Statesboro, Georgia 30461

August 8, 1956

Cancer Info

Anal Cancer

Infiltrating keratinizing squamous cell carcinoma

January 23, 2017

Stage 2

3.1 - 4.0 cm

Grade 2

Positive

Positive

Yes

No

It is sometimes scary

That My God will carry me through

Pray and just be supportive and understanding

Gas cards for going back and forth to Savannah for treatment

J C Lewis Cancer Facility

It is growing again

3 1/2 cm growth believed to be an extra large strombrous hemmoroid removed on 1/16/2017. Bled alot and very painfully. Taken off but stem and surrounding areas still there

Will start 1/27/17

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